Further information and FAQs for Sussex residents

How does my data get used?

In Sussex, like the rest of the country, there are multiple organisations delivering health and care services.

Those organisations might be run by the NHS or the local authority depending on what care they are giving.

One of the ways we’re trying to improve care for residents is making sure that the care delivered by those different organisations is more joined up. Patients and service users consistently tell us that they don’t want to keep retelling their story, they want those treating them to have all the information they need to make informed decisions, with them, about their care.

One of the ways that care can be joined up and improved is by using digital systems to record information. However to do that we need to be able to share data and information about you and your care between organisations.

In Sussex we use the Plexus Care Record to connect health and care records. This is only used to share information with health and care practitioners involved in your care in order to support further care.

By connecting systems across GPs, hospital and community healthcare services as well as Local Authorities, Plexus allows those treating patients or providing care to securely access and update relevant information as part of the shared health and care record anywhere anytime.

What do I need to do?

If you’re happy for your data to be shared in this way, for your care, then you don’t need to do anything. If there is specific information or detail you would rather not share then please talk to your clinician about that.

Other ways we share data

Digital information is a vital part of how we continue to improve health and care services across Sussex.

The data can tell us where we need to focus services or areas which need further improvement or attention.

As part of this we are looking to develop a store of information to support our work in developing health and care services in Sussex and create a system which is more joined up. This contains health and social care information from providers all over Sussex and is called the Sussex Integrated Dataset, or ‘SID’.

In order to do this, we will be asking people in Sussex what data they think we should collect and how we should use it. This will be a wide-reaching programme of engagement to make sure we get the thoughts and views from as many people as possible and to ensure they have a good understanding of how their data is being accessed and used in Sussex.

The SID contains no personally identifiable data such as names, dates of birth or addresses. All the data from these providers is thoroughly anonymised, using secure software to anonymise data in the SID, so it is impossible to identify any individual from the SID. We are developing the SID under strict data controls and in line with the expectations of data protection law. The ICO Code of Conduct on Anonymisation provides further guidance on managing anonymised data.

Please look out for more information about our public engagement events coming soon.

We are required by law to publish privacy notices about how we use data. You can find the privacy notices for each data programme here: