The Sussex Integrated Dataset (SID) is a primary and secondary health and social care dataset that links routinely collected service user and activity data from health and care providers in Sussex to help plan and improve services for our local population.
This data is linked via an individual’s NHS Number so that each contact with a service is traceable. Personal data is anonymized for analysis and understanding of which groups are at greatest risk of poor health locally, how services can be better designed and run and how they can be part of quality improvement and service evaluation of Sussex’ integrated health and care system.
The SID Database contains no patient identifiable data such as names, dates of birth or full addresses which means the raw data from the providers is depersonalised and therefore anonymous before it reaches the SID.
Collecting the data from all of these different organisations means it can then be linked and viewed at a population level to see the bigger picture of healthcare across Sussex. This can help with better Service Design by enabling evidence-based decisions around service delivery and reconfiguration as well as Public Health Intelligence, where using insightful population segmentation techniques can support advanced analytics to effectively target prevention measures, and population budgeting.
The SID abides by General Data Protection Regulations (GDPR) 2016:
“Principles relating to processing of personal data states that: Personal data shall be processed lawfully, fairly and in a transparent manner in relation to the data subject (‘lawfulness, fairness and transparency’);
Lawfulness of processing – Processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
Processing of special categories of personal data where processing is necessary for the purposes of preventive or occupational medicine (for the assessment of the working capacities), medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services;”